Wednesday, December 24, 2008
So while you are opening gifts and eating all of the good California tradition foods...please think of me! I know I will be thinking of you! I love you! Have fun and to My little nieces and nephews...
Mariah, Anthony, Ashleigh and Joshua: Auntie misses you too! Check the mail in a few days for some goodies Santa dropped here by accident. Love you!
Have a blessed day and a very Merry Christmas!
Tuesday, December 23, 2008
Sorry it has been a week since the last update. We have been a little sick and then Kevin and I decided we were going to try to Christmas shop a little late this year for each other! Bad idea....long lines and grouchy people were everywhere! I don't understand for the life of me why people are so grouchy this time of year. I guess if you were separated from you family or recently had lost a loved one it would definitely be hard for you. But other then that why?
Well I had to say a few prayers while out shopping I must say because of the people and how rude some of them were. Even cashiers. One sticks out to me though. A young lady was working at Target ( Our fav store), and she was just really not happy about being there. So I gently said "I just want to thank you for working so hard for people like me who decide to shop last minute and I know from experience that some of them are not so nice when they come through. I hope you have a Happy Holiday season." She smiled and thanked me for appreciating her and what she was doing and I really think that I brightened her day. Again while we were at Home depot getting our tree a lady was out in the freezing cold and the rain in the garden section and she was definitely NOT happy to be there. Once again I said a thank you and it brightened her whole face. I am glad that I could do that for these people. I think that sometimes we forget that some people may be missing their family get-togethers to serve us in the stores extended hours. I until this year have never taken that into consideration because for 3 years I worked in the hospital and every year had to miss Christmas dinner with the family. This year I am treasuring it. And I hope you do too.
Family update time: We are all doing good. We have all come down once again with some sinus stuff but hopefully & prayerfully we will overcome! The girls are super excited about Christmas and we have been reading the Christmas story to them everyday for the last 3 weeks from the Bible which has sparked some very interesting conversations. Not any that we couldn't handle but things that we as adults had never pondered. Kevin and I have been reading the novel "Fireproof" together. We kinda decided that we really needed to reconnect and we have committed to do "The Love Dare" with each other as a gift to one another this Christmas. The book is fabulous. I really wish we would have seen it in the movies! It comes out on 1/27/2009 and we already pre-bought it. I cant wait! We are Fireproofing our marriage!
I will post the Pics from Christmas morning as soon as possible after the present unwrapping happens! Until then Have a blessed and safe Christmas! Love to all!
Love Kevin and Jacki
Wednesday, December 17, 2008
Anyway, Kevin and I are praying for a healing of her lungs and that the scar tissue will disapate as she gets older. We know that God is bigger then any diagnosis and way smarter and capable of healing her! Rylie herself is a child that is here after the doctors said it would NEVER happen. Guess what? God had different plans! I love how God does that!
Danielle update: She has been having a few bad days lately but who doesnt have those occasionally. The therapy is working but not as fast as we would have hoped. Thats okay we take any progress that comes our way! I came across a blog yesterday that was talking about
1 Thessalonians 5:16-18 :
"Be joyful always; pray continually; give thanks in all circumstances, for this is God's will for you in Christ Jesus."
I have to say that it touched me. It opened my eyes to a lot of things in our life! I find myself asking why are all of these bad things happening to us?? Why, why, why?? I know I never look at the situation that I am in and say well I know this is a bad thing but what can I learn from it. I simply dont. But after reading this verse and praying about it, I realize that my circumstances shouldnt affect my thankfulness for the things that God teaches me everyday and in every situation. So today I awoke in a better frame of mind and ready to start this day with a clean slate! I am super excited about it too...
Journey with me....it should be fun!
Have a blessed day,
Thursday, December 11, 2008
Anyway, although Danielle has had 3 rages in the past 3 days and has required restraining on 2 of the three and passed out again on the second time she raged. I wasn't nearly as panicked this time but it was scary. Her medication was raised again about a week ago and we think this is the reason that she passed out again. I just hope that now that her medication has been lowered to the original dose that she wont do that again. Other then that she is doing better. The news we heard is still hard to deal with but we have to keep living. We have been praying through it the best that we can. The new church that we go to has been a saving grace for us. We just need to make ourselves go weather we feel like it or not. Sometimes the depression just gets to us and we are paralyzed by it but I think if we pray through every time and never give into the enemy he will realize that we are not up for his nonsense and that we are protected by the Armor of God!
And now without further a do.....The pictures that were promised over a week ago:
This is right outside our hotel room, and I thought it was so cute that they were sitting there so nice!
Danielle roasting marshmallows for a good old fashioned S'more!
The family minus me at JICP Festival of Lights!
Rylie with her "g-mama"
One of very few pictures where Rylie is actually looking at the camera!
A family pic at the Lights
The big body bubble maker at the Childrens Museum
Rylie loved this huge Lite Brite at the childrens museumTaa-Daaa!
Rylie loved the sand in the archaeological dig exibit
Monday, December 8, 2008
We hope you all had a great weekend! We did! It was great getting out to see the lights on JI. We really did have a great time. Then on Sunday we hung up some more Christmas lights. It really was fun. The only bad thing is that the kids have had yucky noses and coughs for over three weeks now! I have no idea what the problem is! They have both been on antibiotics and the nasties only go away for a short time and then they come back worse! AAGGHHH!
Well, anyway like I said in the previous post we have had some news come up that was very upsetting for us. We are still having a hard time with it. Well actually, I am. It has opened some old wounds that I thought that I had dealt with but I guess I ha vent. I am going to get help for it but right now Danielle is our focus! So we had an appt with another therapist today and we all feel that it will be the best place for the entire family to get support. I just hope that eventually we find out the whole truth and then we can all just move forward. We will see though.
That's all I have for now, but I will post some more tomorrow! I might even upload the pics from Myrtle Beach and the Lights!
Have a blessed night
Saturday, December 6, 2008
As most of you know, we attend therapy a couple of times a week and it helps us a lot. It has brought to light several things that we never knew were bothering Danielle and with those things known we can help her better. With that said, you all should know that something came out in therapy on Thursday that was very upsetting to us. So much so that we had to leave and go to Kevin who was at a training meeting in Georgetown and stay there with him until he was finished. We cant share exactly what it was that came out nor will I give any clues as to what it is. We just ask for your prayers and support as we move through what will be a very difficult time. Once again we will trust that the Lord will deliver us from this pain and give us the peace and understanding that we need to move past this as well.
We have pulled the positive out of the situation, though there wasn't much positive to pullout, but none the less we did. I know if we didn't have the strength given to us by God, we wouldn't have been able to do that. Kevin has been a wonderful father and husband and spiritual leader for us through all of the things we have had to go through so far and now with this new development he needs our prayers to continue to be strong for our family and make the decisions that are necessary for our family. We have prayed together for Gods Will to be done in this situation and that He will be Glorified through it all but somehow we feel like there is something else that we could be praying for. We know that God is so much bigger then anything this earth could throw at us and yet we feel like we are continuously questioning why "HE" is allowing this all to happen to us. We do try to walk in His light. We do live and raise our children according to what He says in the Bible is required of us. He is always challenging us to lean on him more and more with more difficult tasks then the ones before.
We know that there are way worse things that we could have to be dealing with like a terminal illness, the loss of a child, the loss of a parent, homelessness, hunger and many more things. So why do we question the One who only has our best interest in mind? Maybe because we don't what lies ahead. He knows what this situation is preparing us for. If we leave it at that and trust that He knows what is best then will we be giving glory to Him?
I am a baby Christian. I don't claim to know it all or even understand it. In fact there are many things that I don't understand but the one thing that I do know is that the Lord is sovereign and I will take comfort in that...
On a side note: Our trip to Georgetown was a much needed escape. While Kevin was in training I took the kids to Myrtle Beach and we had a great time. I took them to the Childrens Museum. They had a great time. We also went to Target. My kids, especially Danielle, love this store. We could spend hours there and many times we do. After all that we headed back to Georgetown to get daddy and the kids were tuckered out so they slept the whole way back! The Lord knew I needed that. I had some great time with the Lord during that time. When we got back to the hotel we got daddy and headed to his parents house to drop off Danielle and then headed home.
We needed each other and what a comfort it was to be away and with each other. The perfect escape from reality. I must say though that reality was waiting for us when we got home. That was okay though. We were better prepared for it then. Or at least I was. I try not to speak for my Husband unless I know for sure he would agree or that he actually said what I write.
Anyways, we want to thank you all in advance for your thoughts and prayers. Have a blessed day and weekend!
Jacki and Kevin
Wednesday, December 3, 2008
Look mommy, I am holding my own tooth! I think it kinda grossed her out.
The famous tooth...waiting for the tooth fairy to come pick it up!
We hope you enjoy! Have an awesome evening!
Rylie's first time eating chocolate fondue...she loved it!
She wasnt happy when we were eating so mommy didnt get to eat much of her dinner!
We decorated our Christmas tree this weekend as well! We had a blast but forgot to take many pictures! :( But we have memories and thats what counts!
Hope you enjoyed the weekend pics!
Hava a blessed day
Friday, November 28, 2008
Anyway, the service was wonderful. And one of the points the pastor had made was about forgiving others no matter what. Easier said than done for me because I can only take so much before I feel like if I forgive you again then you hurt me, my family, etc again I cant or wont forgive that person. But I learned that its not really about me. Its about living by the Word of God. I cant begin to feel and see what He has for me and my family if I have grudges and unforgiven issues between me and God. So I have been doing a lot of thinking lately, especially with the holidays here. I have a yerning for God to show me what His love feels like and all along I have not known that I wasnt feeling all of what He has for me. How awesome is our God!
I guess in the past I have been like "God, if you could just heal Danielle, fix whats broken in my marriage, help my family , etc...then I will have a greater faith." Fact of the matter is, that is not how it works. He asks us to take step of faith. If I knew how to link the site of the sermon to this blog I would because I left that church on a misson. I have continued this week to take baby steps but I know I need to take big steps of faith. I guess I just need the reassurance of the faith that my baby steps build. I dont know. We plan to continue to attend this church. Our spirits were "fed well "as I have had several people tell me about this church. I cant wait to see what this week brings. I know this past week has been a week full of "God moments". Where I know He has been or is there in certain moments. He has shown me that He is there always teaching me!
Well I guess with all of that said I should give you all an update on the family!
The Kids: They are doing very well. We enjoy ,and so do they, our fmaily worship time! It is so heart warming to see my children with thier child-like faith. Danielle is doing well. Her therapist believes that she might be entering a manic phase so we are watching her very closely. But other than that she is awesome! Rylie is and has been very fussy and clingy but I think if she could sleep(take her naps and sleep at nite) she would be a much happier baby! But again she is doing good too!
The mommy and the Daddy: We are doing well also. Other than being a little sleep deprived from Rylie Having a reaction to the Flu shot, we are good. We have been spending a lot of time talking about what we want out of our church experiences and what our walk will look like outside of church. It has been a wonderful week of discovery to say the least! I hope that every week will be a little more exciting and inspire us to want more for our family! :)
Thanksgiving: Was wonderful! A lot of good conversation and food and of course fun too! We have a lot to be Thankful for!
Well I am off to start the clean up process...
Have a blessed day.
PS: I will post pictures later today!
Wednesday, November 26, 2008
While everyone is having thier Thanksgiving dinner I want to share that I will be praying for each of you! It is my way of saying thank you.
Off to start the festivities and setup! HAPPY THANKSGIVING! GOD BLESS YOU ALL ON THIS WONDERFUL HOLIDAY!
Saturday, November 22, 2008
--Matthew 11:28 NIV
This was the verse that the radio station we listen to talked about a few days ago and it sparked some interest for me. I have been incredibly tired as of late and have had zero motivation to do anything. The kids and I haven't done anything outside of this house (except going to Target & grocery shopping) in over a month and I felt like I was doing a diservice to my kids. I having been feeling kinda blue for about a week or so because of this but have zip motivation to fix the problem.
So like I said I heard the this verse on the radio and it struck something in me. So I did exactly what Jesus asked me to do. I came to Him in Prayer and I prayed. That night I fell asleep easily slept most of the (which means so did Rylie) and woke up completely refreshed (which doesnt happen frequently). I chalked it up to just being exhausted, of course we slept, our bodies had no other choice. But then last night the same thing happened. Rylie never sleeps through the night. That girl still gets up 2 times to nurse and let me tell you she puts up a fight if she doesnt get to. I will eventually give in so she doesnt wake the whole family up though. Well this morning I was thinking about what great sleep I have had and realized that certain things in our house are running smoother. That must be why I can rest peacefully. Not because Jesus put me into a deep sleep ( well maybe He did, I dont know) but becasue He helped resolve somethings around here.
A few examples:
1. Kevins job was giving him so much hassle about having to take time off for Danielle's appointments and having to come home if she was raging. Big stressor! Well they have an understanding now and been very supportive about whatever he needs to do to help Danielle.
Praise be to God!
2. Danielle, as you all know had a terrible medication reaction which landed her in the hospital and caused us a huge amount of stress and tears. Now her medication is working. No side effects(except weight gain). No fighting with her to take the medication(which most kids do). No rages!
Praise be to God!
3. I have and still do hate giving Danielle her medication because it has caused me a lot of anxiety. That anxiety has come from my own thinking that I some how failed her as a parent. That I couldnt make her better with just a kiss on the boo-boo. I have also been wondering what God thinks about my parenting and the decsions that we have made regaurding her care. We have seeked Him through it all to lead us to what He wants us to do but we always look back and say "Is that what God wanted us to do or what we wanted to do?" I am sure more often then not we have done what is comfortable for us weather He wanted it or not. Thank goodness that our Father is a forgiving father.
"Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God."--Philippians 4:6 NIV
I have been repeating this verse to myself whenever I am feeling anxiety about the medication and that maybe she is just having another side effect. Every little thing that happens to her, every sniffle, cough and sneeze. Every tummy ache and headache. I am always thinking that it has got to be the medicine. I now have a peace this morning that all of these things are NOT the medication!
Praise be to God!
4. Rylie, like I said already, has been sleeping mostly through the night. She has never done that. We believe that since the raging and loud unpredictable behavior from Danielle is ceasing that now Rylie has a peace that allows her to sleep restfully. We know where that peace comes from! Now we have to work on getting her out of our bed! :0)
Praise be to God!
Here are the few that I can think of right off the top of my head. I know after my rest that I can and will be able to serve the Lord today and everyday that I seek Him.
Have a blessed day!
Wednesday, November 19, 2008
Well once again we have had another wonderful week with Danielle! She is doing better in a lot of areas! The biggest one for us is the raging. It is awful to hear her talk the way she does when she is raging. It's like the evil one is posessing her. Is that possible?? Anyway, now that we are on week 4 of the medication that I dread giving her, she is much better. We have found that we have had a lot more fun in the evening (minus daddy because he is at work). The girls and I have started dancing around the house to the Christian radio station for about 20 minutes every night. It is so amazing to me that Danielle at age 5 knows the words to the songs and for the most part understands what they mean. Rylie has been just wild! She does more running and a little bit of turning around in a circle! She contributes to our laughter and that whats counts!
The other thing we started is talking more about Jesus in a way that is simple for the girls to understand. I love that Danielle attended JICC Preschool because just those 3 precious years have built a foundation for her that I think no diagnosis will shake! I praise God for that! Danielle recently gave Rylie her preschool Bible and told her "Rylie, You have to listen to this book. Its really good!" I laughed. I smiled. Danielle still has a really hard time with sharing anything but because Ms. Shandy did such a wonderful job teaching her the stories from this book she thought Rylie needed to have it so she could learn from it too. That is excellent progress.
Now on to Thanksgiving. It is going to be here before we know it! We are hosting it this year and I couldnt be more excited! I have made invitations and the menu(pretty much) and just being able to spend the holidays with the family is a blessing. The kids have been really excited too! They are going to help as much as they can, which isnt a lot, but its enough for them to learn a lesson about being helpful! I love being a mommy! I cant imagine my life without my kids. I find myself considering going back to work as a nurse because of finances, but after I hear that "mama" from the baby moniter or Danielle telling me that she loves when I come to her school, I cant imagine any job more rewarding! After all, God entrusted these children to me and it is my job as a mommy to raise them up in the Word. No amount of money in the world is worth more than that!
Well I am off to the house work! And hopefully my Bible study for today! Thank you all for your thoughts and prayers!
Have an awesome day,
Sunday, November 16, 2008
She has learned how to climb on the oven door....totally not safe. We love hanging out on the hammock in the back yard while Kevin is grilling our dinner!
Ther's my girl Danielle! Cute as can be!
Thursday, November 13, 2008
Just wanted to let everyone know that I am home and recovering. They gave me more medication in the injection this time and it caused some yucky side effects. I am feeling better from those but I am really sore! Hopefully I will be better soon.
Danielle update: She is having some huge anxiety issues this week. I hope its not a medication side effect but we shall see. She hasnt been to school in 3 days because of this. So please continue to pray for her. Thank you!
Well I am off to bed now. Good night!
Wednesday, November 12, 2008
I thought that I would share with you all that today I am going to have steriod shots put in my shoulders today. It is definitely not pleasent but it helps over a period of time. I will be relying heavily on prayers and my husband to help me with everyday tasks. One thing I doubt he will do is update our blog...which is fine with me, it just means that it might be 3 days before I can lift my arms enough to type. So I will give you all a little update.....
Kevin and I are getting good reports from the therapist and family members about us having a peace about us and our kids. That is definitely what we are trying to accomplish. Ms. E. is also very proud of Danielle for her very controlled bouts of anger. That means that she still gets angry but she is able to better control herself. We see that as progress. Praise God!
Danielle and Rylie are playing a lot better together. They are sharing toys and books and mommy too. It is a much happier home these days and that makes me very happy! We are hoping for a stablized mood by the new year!
Well we have to start the day now! Have a blessed day!
Monday, November 10, 2008
YES! WE actually went thru an entire weekend without a rage! I think that the medication might be working. There is a downside (the weight gain), but I think we will be able to control this with exercise and diet(I hope). Danielle is really proud of herself and so are we. We would like to thank everyone who has continued to pray for us too, because we know that God has answered these prayers!
On a yucky note: Rylie had a fever last night of 103.7 and she was taken to the ER at Summerville Medical. After 3 hours of waiting we found out that she has Hand, Foot and Mouth disease. The doctor said this is a viral illness and that it is really going around right now. He suggessted that we avoid shopping carts even if we use the covers ( unless I washed it after every use, which I dont. I wash it weekly with my laundry). He said a better bet would be to use our stroller as much as possible. She is feeling a lot better today and her fever is much lower but it was a scary night to say the least. We once again used the power of prayer last night and we believe that our prayers were answered. Her fever broke even when the doctors said it would probably take 2-3 days of being that high. Well it broke before we left and now its like 100.2 ish and has been all day! Praise God!
"Are any of you sick? You should call for the elders of the church to come and pray over you, anointing you with oil in the name of the Lord. 15 Such a prayer offered in faith will heal the sick, and the Lord will make you well. And if you have committed any sins, you will be forgiven."
James 5:14-15 NLT
By the way, we love our new camera! We will post some new pics soon! We have just been so busy! That seems to be the story of our life these days!
Have a blessed day!
Jacki & Kevin Smith
Saturday, November 8, 2008
Here's an update on the princess:
Well we made it through another week.Things are getting easier and I think Danielle is adjusting to her meds at a lower dose a lot better. We havent had a meltdown since tuesday afternoon and she attended school 3 days this week. That is a huge accomplishment for her. I cant wait until she will be attending 4 and 5 days all day! She needed to get picked up an hour early on Thursday and Friday but thats okay. She is trying!
Rylie update: I am convienced that Rylie should have been my boy! She is so silly! She is always in to everything! We have had to call poisen control at least 6 times since she turned 1 and that was only 4 months ago! She is starting to talk a lot! She learned her name and Danielle's this week and I think she might be saying "mine" in some funny way! She is still climbing on everything and the whole arching her back when she doesnt get her way thing isnt getting any better either. Dr Stadalsky says its totally normal but man it is scary when she smacks her head on the wood or tile floor! She is getting really tall too. I think they say she is in the 80% for height. She certainly doesnt get that from me! Over all though, she is doing awesome! Doing just what a 16 month old should be!
Kevin and Jacki: We are doing good too! We wish we had a little more alone time to spend with each other and with God but we are grateful for the little time that we do have! Our babies wont be little forever and we realize that we are lucky to have been choosen to parent them. We still have not found a church to attend yet which is making it hard to meet new people in the Summerville area but we feel like right now we should be spending this time with the kids and stablizing Danielle!
Well off to start dinner. Thank you all for your thoughts and prayers. We know that they have been working! Have a blessed weekend!
Jacki & Kevin
Wednesday, November 5, 2008
So tonight, against my wishes and better judgement I will restart the dreaded medication and pray that the Lord will keep her safe and that he will show us what the right thing is to do. I wish that I could approach this situation with hope and knowledge that whatever happens is Gods Will for her and for us. But for some reason that is not how I approach it. And it plain out sucks! I hate this for Danielle. I hate this for my marriage. I hate that Rylie can not do normal baby things because of the beatings that she has taken from Danielle. I hate that we cant even make to church for fear that Danielle will not want to be left with people that she doesnt know and that when we get home she will melt. I hate that my life revolves around Dr. appointments and therapy sessions, previewing and fighting with my family. I hate all of this. I really just want it all to go away!
I know that God must be giving me the strength to get through this because, maybe at the end of this struggle He will be Glorified. And after all isnt that what we are all supposed to do through the good times and bad???
So I am willing to endure anything if it will bring salvation and eternal glory in Christ Jesus to those God has chosen.2 Timothy 2:10 NLT
Yes, and the Lord will deliver me from every evil attack and will bring me safely into his heavenly Kingdom. All glory to God forever and ever! Amen 2 Timothy 4:18 NLT
So after a very emotional day I am back to the trenches of my so called life. We do however what to thank everybody for their prayers and support. Keep them coming! If it weren't for those we probably would have no strength to handle any of this. We will keep everybody updated on the situation and of course all of the joyous things as well as they happen!
Have a wonderful day! Until next time,
much love jacki
Monday, November 3, 2008
Saturday, November 1, 2008
Family update: Well because we have had 2 bad weeks now, we have had to start the dreaded medication. It is an anti-psychotic. It has awful side affects including producing swollen breasts and lactation. We are just praying that she doesn't get that side affect. That is ridiculous! But because it is the one that has the most research done on it and it is approved by the FDA for use in children with aggression caused by conduct disorders we feel like it is a reasonable drug to use. So I feel a little better about this medication trial. However we dont think we will use the other medication, Lithium. I have seen the side affect of this medication working in Behavioral med at st. francis hospital. Basically we want Danielle to be happy and live the most normal life that she can and if that means a little medication then we will do what we need to do. So far she has tolerated the medication well. As for the rest of us we are all very tired. We are busy with all of her appointments and then of course life in itself is busy. The positive is that we have our family worship time in the car on the way to all of these appointments. We have had some awesome conversations in the car! Even Rylie is trying put in her 2 cents about what we are talking about with a shaking of her head. It is so cute. And when we have worship music on in the car, especially the kids mixs she will sing along(in baby talk, of course). It is cute to watch how much she look up to Danielle. If Danielle is raising her hands in praise then Rylie will do it too! I just love watching that interaction between them.
Other than all of that heavy stuff we have been doing good! We haven't been sick in 2 weeks and that is a wonderful blessing considering the stress we have been under this week! Praise God for our health! We have recently done some painting in our master bedroom...well it's finished being painted. The furniture, however is not finished. So we are still in the process of sanding down the previous finish and applying the new one. I will post some pics when it's complete!
As for Halloween: We went to a freinds house in Goose Creek and hung out there. I dressed the kids up as Minnie Mouse and A ladybug! They were adorable! We got some candy from a little bit of trick or treating but becasue it was way too cold to be out we just went to like 10 or so houses. It was fun but I am glad it is over. I am ready for Thanksgiving. We have so much to be thankful for!
I also want to thank all of those who have been praying for our family! We know that the prayers are helping. I cant explain the strength that we have had to deal with all of this and we know it comes from Him. So please keep them coming! :)
Have a great weekend,
Tuesday, October 28, 2008
Sunday, October 19, 2008
Having fun At Rollie Pollies on a rainy day
Friday, October 17, 2008
It is so exciting to have a first happen for Danielle these days because usually we are excited about Rylies firsts because most of Danielle's first have already happened. I guess I forgot about the first loose tooth! Silly me!! Well while I am just extatic about this I dont think Danielle is. She is absolutely terrified that she will bleed.(And she will) But we explained just a little and that it would feel better once it came out. We shall see though how it goes! Keep checking for updates!
We are all finally healed from the illness that lingered forever it seemed. We will continue to pray for a healthy winter!! :) And as for our new life, we are adjusting well. With gentle reminders from the Lord that He is always near, our life has been somewhat pleasant. Praise God!!
Well off to start the day....until next time,
Wednesday, October 15, 2008
Sunday, October 12, 2008
5 Your unfailing love, O Lord, is as vast as the heavens; your faithfulness reaches beyond the clouds. 6 Your righteousness is like the mighty mountains, your justice like the ocean depths. You care for people and animals alike, O Lord. 7 How precious is your unfailing love, O God! All humanity finds shelter in the shadow of your wings. ---Pslams 36:1-7 NLT
Isnt God Awesome??? Needless to say my day has been a lot better....and so has Danielle's!
Thursday, October 9, 2008
So basically I am better. I am done with my antibiotics and the cough syrup is really nasty but works so good. Enough of that. Thats crazy! You can tell I have been couped up this week.
Family update: We are all starting to feel normal again. The whirlwind of emotions has started to subside and reality has set in and we get it. We get that not very many children get this diagnosis at age 5 and also that there are not many support groups for families that suffer from this wretched disease. I am actually thinking of startinga support group for our area. I have to get my family stable first, but I think that after we do we need to reach out to other families. It's really hard to accept this diagnosis when nobody can even imagine that your child could even fit that diagnosis. So basically we are all in it alone. And that sucks! For us, we have found strength in our Father. We pray a lot. We cry a lot. We pray a lot more and we look for the blessings in the horrible situation. And believe it or not we have. They are still unfolding but as soon as we know the full extent of what they are we will be glad to share them!
(Sidenote) Some of you dont know that Kevin and I have had several miscarriages and 1 late term miscarriage(I hate this word). This month is pregnancy and infant loss awareness month. Please keep us in your prayers as we mourn our loss. We recently lost one of our angels the day before our 3rd wedding anniversary in July and we are still sad about this. We love every one of our babies from conception to death and we know we will see them all one day in heaven and they will wipe all of our tears away. But until then we will queitly mourn them on October 15th at 7pm by lighting a candle for each one of them. Please feel free to do the same. Thank you!
Okay...Danielle update: She is on her way down. Unfortuantly she has been reminded of a trauma that happened when she was really little invoving firemen and since this week is fire prevention week at school she has been exposed to them all week. The therapist says that it is "stiring things up inside her" which is good in one way but not in others. We will be at the therapists office 2 times next week to battle this one. As far as her behavior though, she has done well with boundries. We have been extremely consistent with discipline and it has worked. We have a little more patience with her then before and that helps as well. (That is definitely a blessing from God). So overall she is making progress. We know that we have a long way to go, but if we can make this kind of progress in 1 month then we can make great progress over the next 6 months and hey, she might even be completely stable! YEAH!!!!!! WE are looking foward to that day.
Rylie update: A little stinker but totally worth it!!! She is everywhere! She is really starting to talk...A lot!!! It is hilarious! And she nods her head yes and no now too! She is growing up so fast! I will have to get some video of this and post that! Maybe tomorrow....until next time,
Have great night
Sunday, October 5, 2008
Just thought I would let everyone know that I actually took a turn for the worst yesterday and I ended up in urgent care for 2 hours. Well come to find out I have Strep throat and Bronchitis! What!! Where in the world did I pick that up from???? I know it was the grocery cart or maybe the gas pump....either way I hate this. My house is a wreck and my children are running around like banchies destroying what they can reach. And you're probably wondering "Wheres Kevin?". He is at work! Yep. He is at work. He cant miss any work for illnesses because we have to keep his time available for Danielles episodes.(Yes, thats part of our new life. Waiting to see if Danielle will have an episode runs our daily life.) Please God, help to to be grateful for your blessings and your grace.
So anyways....while I am suppossed to be resting I am chasing Rylie, Typing this post and coughing my head off. So I know I can eliminate 2 of these thinga if I lay down so thats all for now! I will post tomorrow about how I am doing. Good night!
Saturday, October 4, 2008
This is Rylie's new thing. We cant get her to stop doing this! When can we start timeout??LOL Needless to say she didnt get down and she protested when we finally got her down!
Tuesday, September 30, 2008
Well, we offically are all sick! We have Viral Pnuemonia. Where we got it from....who knows!All I know is that it is aweful! I wish that we could just go one month without being sick!
Okay..finished ranting. Now, we want everyone to know that we are not ignoring our family and friends but you all should know that we are still trying to figure out life with this new diagnosis. We have to walk on eggshells pretty much all of the time and when we have quiet time we try to spend that time just Me, Kevin and God(and the Bible). If we even for one day forget to pray or praise him, or just even decide that sleep is much more important...then we have a REALLY BAD DAY!!! We know it is not from Him. We know that we depend on Him for strength,peace, hope and love. When we dont ask we dont recieve. We become very cranky, short and ugly with each other. So when we dont call or return your emails/voicemails, it's really not you. It's the fact that we have spent every ounce of energy trying to live a semi-normal life and not only that but to give honor and praise to our Father for his continuous blessings everyday through prayer which can take some time. (It is totally worth it though)
Well we are off to bed now! Have a blessed evening and a wonderful day until next time.....
kevin and jacki smith
Monday, September 29, 2008
Sunday, September 28, 2008
Well I wish I was in better spirits today and could bring everybody a positive entry. But because we have a really bad time on the weekends with Danielle we usually are just finished by this time in the weekend. Anyway, Kevin and I have been reading a lot of parenting Bipolar children books and we are feeling a lot more confident in parenting and handling her mood swings and her meltdowns. They have given us a lot of hope and understanding of what she is going through and how we can help. We are also really starting to see the Hand of God working in our favor through this whole thing. We havent been able to find a home church yet and eventually when we do we feel it will be an enormous help.
For now though we are hanging in there. We dont have a "normal" life but we try to keep it as "normal" for Rylie as we can and we try help Danielle understand that she is still loved and that we would not change her or anything about her. God has given her to us and we believe that she is a precious gift from Him. Our prayer is that she will understand/know that we are going to get her through this and we are going to help her understand her diagnosis and when she has any questions we hope that she will feel like she can come to us and ask them.
Danielle knows that we have a "TEAM DANIELLE" helping! We have all kind of specialists and therapists, teachers and family who love her dearly and are dedicated to being there for all of us but most importantly, Danielle. She feels very special and is excited about this.
Well, I cant be away from the girls for much longer because of safety issues but I will keep everyone up to date on the progress we continue to make. Please pray for confidence for Kevin and I, Peace for all of us, and understanding for the doctors and therapists handling Danielles severe case. Thank you all. WE love you!
The Lord will guide you continually, giving you water when you are dry and restoring your strength. You will be like a well-watered garden, like an ever-flowing spring. Isaiah 58:11 NLT
(We find hope and Peace in this verse)
kevin and jacki
Thursday, September 25, 2008
Well I just thought that I would share a little about the confrence we just had with Danielle's Kindergarten teacher. Basically she is doing very well in school and is really retaining a lot of what she is learning. She enjoys all of the "Centers" that they do in the mid-morning time and she loves going to the library. We are happy and thankful for that. She is also very shy but has many friends. Overall she is doing awesome!
On a another note: We have had a better week this week. Her behavior has been better controlled and the counseling seems to be working. We have also implemented a new behavior modification plan and that really helps her identify the feelings that she is having and the consequences of her actions. We can now help her through her bouts of anger and frustration. We believe that our Father has had His Hand in every aspect of this situation and we continue to sing praises to Him! We are so blessed to have such a Loving and All-Knowing Father! He knows what we need and when he needs to remind us that He is still near. I wish I was better at quoting the Bible, but I know it says that in the Bible somewhere and I am thankful for that!
We want to thank you all for your prayers and concern and we will keep you all updated on how everything develops from here...until next time....
Happy Fall Y'all!
Tuesday, September 23, 2008
The Flamingo's were really stinky!
Then Danielle got to ride a pony:
And when it got really hot we went into the aquarium:
and then it started to rain really hard:
SO then we went bak to our hotel where we had fun with the shower caps!
It wouldnt be complete without Rylies playtime at Little Gym....so here she is!